To counter the risk of cross-infection, there are now individual cubicles in the CF clinic and ward at Alder Hey Hospital and strict hygiene standards apply.
Miriam is no longer allowed to play or mix with other children with CF as a consequence of the risks of cross-infection.
These include cystic fibrosis, Marfan syndrome, heart failure, neuropsychiatric diseases, and diabetes.
Three cases/lessons focus specifically on how genomic medicine informs testing for and treatment of cancer.
The family had meetings with all members of the CF team a doctor, a nurse, a social worker, a physiotherapist and a dietician.
Fortunately, Alder Hey Hospital is not far away from their home in Merseyside.
While Sue & Tim were relieved that the doctors now knew what was the matter with Miriam, so they could begin to treat her, waiting for the results of the tests on Rebekah and Hannah was a particularly worrying time.
Fortunately, the tests were negative although both are "carriers".
Sue & Tim have been trained to administer these antibiotics although for certain treatments she may still have to go into hospital (as she did on one occasion last year).
The threat of infection is an ever-constant danger most particularly from one CF patient to another.